Her Story: Finding Beauty in the Storm

By Guest Blogger Venus Bolton

There are times our children get sick and as parents we tend to them attentively, doing everything we can think of to make them feel better. Sometimes Mama’s home health care does the trick; but if you have multiple kids like me, your children may be on the germ-share program; so invariably what goes around tends to make the rounds.

However, imagine being told the illness your child has is life threatening – that time is running out and your options are few. When my husband and I received this news in 2011, it didn’t feel real. Doctors declared that our 4-year old daughter had severe aplastic anemia. Aplastic anemia behaves in the same way as several childhood cancers, with a similar course of treatment.

I now think back to the three years of active treatment that followed this diagnosis, along with two years of maintenance treatment, and I am truly amazed at how we navigated life during those five years. An illness of this magnitude can impose a crippling toll on a family.

The most significant lesson I learned is that beautiful things can happen in the midst of the worst storms life throws your way. My husband and I experienced what the hearts of people coming together to be the blessing looks like. We felt like every good thing we had ever done in our lives was returned to us through the love, prayers and generosity of others.

Through this unimaginable set of circumstances, we’ve had many opportunities to share our story as ambassadors for patient families, in conversations with lawmakers and officials, and by working with businesses and organizations that support patient families. We’ve walked alongside other parents (who became friends) through diagnosis, treatment, heartache and grief.

Our 9-year old daughter was recently released to full survivorship, and while it may sound cliché, my family has a renewed appreciation for life. We take very little for granted and have learned not to sweat the small stuff, because in the grand scheme, it all is smaller.

I never thought I’d say it, but what came to wreak havoc in our lives has ultimately ended up blessing our family in some ways we didn’t expect. Most importantly it gave me, and my husband, a greater desire to have a positive impact in our community, and to put ourselves in position to bless the lives of others whenever possible.

Venus Bolton writes and speaks on issues related to faith, wellness, caregiving and child advocacy. She lives in Midlothian, Virginia with her husband and four children and blogs regularly at Three & 1.